Reading List and Links
The following organizations and reading materials may be helpful for people who have or are at risk of AMD. This material may also be useful for physicians, caregivers or anyone learning about the disease.
Sections:
Organizations
416-486-2500
AMD Alliance International is a coalition of the world?s leading vision and seniors? organizations. The Alliance works to raise awareness about age-related macular degeneration and available options for prevention, early detection, treatment, rehabilitation and support services. The Alliance represents 40 member organizations in 20 countries. AMD Alliance is the only international organization that concentrates exclusively on AMD.
Canadian Ophthalmological Society
613-610-1525
The Canadian Ophthalmological Society supports the provision of optimal eye care to all Canadians by promoting excellence in ophthalmology and providing services to support its members in practice. Since its inception, it has set vision standards used by the federal government for automobile drivers, pilots, fire fighters, police officers and the Canadian Coast Guard.
Canadian Association of Optometrists
1-888-263-4676
The Canadian Association of Optometrists is the professional association that represents Doctors of Optometry in Canada. It is also the national federation of ten provincial associations of optometrists and represents over 3,200 members across Canada. As a national voice for the profession, the Canadian Association of Optometrists works on optometry?s behalf with government, industry, vision care patients, the public at large, and other health care professionals.
Eye Institute
The University of Ottawa Eye Institute is part of the Ottawa Health Research Institute and the University of Ottawa, Faculty of Medicine, located at the Ottawa Hospital General Campus in Ottawa, Ontario. It is a world class facility recognized internationally for excellence in patient eye care, research and teaching in the field of ophthalmology.
National Coalition on Vision Health
416-480-5091
The National Coalition for Vision Heath is a non-profit coalition of Canadian organizations and service providers of vision care industry, research, education, rehabilitation and consumers. Partially funded by Health Canada, the Coalition was established in 1998 as the result of a unanimous recommendation by delegates to the National Consultation on the Crisis in Vision Loss. The recommendation called for the establishment of a multidisciplinary group to identify priorities for improving vision health and promote and coordinate advocacy, education and information-sharing networks and initiatives, nationally and provincially.
College of Family Physicians of Canada
1-800-387-6197
The College of Family Physicians of Canada is a national voluntary organization of family physicians that makes continuing medical education of its members mandatory. The College strives to improve the health of Canadians by promoting high standards of medical education and care in family practice, by contributing to public understanding of healthful living, by supporting ready access to family physician services, and by encouraging research and disseminating knowledge about family medicine.
Health Canada
1-866-225-0709
Health Canada is the federal department responsible for helping Canadians maintain and improve their health, while respecting individual choices and circumstances.
Public Health Agency of Canada (Division of Aging and Seniors)
1-866-999-7612
The Division of Aging and Seniors, Public Health Agency of Canada, provides federal leadership on health issues related to aging and seniors. The Division serves as a focal point for information and a centre of expertise in this area.
Canadian Institutes for Health Research (Particularly the Institutes of Aging and Neurosciences)
1-888-603-4178
CIHR is the Government of Canada's health research funding agency. It supports the work of up to 10,000 researchers and trainees in universities, teaching hospitals, and research institutes across Canada. CIHR is committed to developing high-quality people, excellent science and training the next generation of health researchers.
Self-Help Books
Bergman, Lindy. ?Out of Sight, Not Out of Mind: Coping with Age-Related Macular Degeneration.? The University of Chicago Hospitals, Chicago, Ill. 1998.
Duffy, Maureen. ?Making Life More Livable. American Foundation for the Blind.? New York, NY. 2001. 1 (800) 232-3044, www.afb.org.
Mogk, Lylas G. and Mogk, Marja. ?Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight.? Ballantine, New York, NY. 2003.
Rosenthal, Bruce and Kelly, Kate. ?Living Well with Macular Degeneration.? New American Library. New York, NY. 2001.
Solomon, Yale with Solomon, Jonathan D. ?Overcoming Macular Degeneration: A Guide to Seeing Beyond the Clouds.? Avon Books, New York, NY. 2000.
Clinical Bibliography
Studies and resources about the science of AMD
Age-Related Eye Disease Study Research Group. A Randomized, Placebo-Controlled, Clinical Trial of High-Dose Supplementation With Vitamins C and E, Beta Carotene, and Zinc for Age-Related Macular Degeneration and Vision Loss: AREDS Report No. 8. Arch Ophthalmol. 2001; 119: 1417-1436.
Age-Related Eye Disease Study Research Group. A Randomized, Placebo-Controlled, Clinical Trial of High-Dose Supplementation With Vitamins C and E and Beta Carotene for Age-Related Cataract and Vision Loss: AREDS Report No. 9. Arch Ophthalmol. 2001; 119:1439-1452.
Age-Related Eye Disease Study Research Group. National Eye Institute Visual Function Questionnaire in the Age-Related Eye Disease Study (AREDS): AREDS Report No. 10. Arch Ophthalmol 2003;121(2):211-217.
Ambati J., Ambati B.K., Yoo S.H., Lanchulev S. Adamis A.P. Age-Related Macular Degeneration: Etiology, Pathogenesis, and Therapeutic Strategies. Surv Ophthalmol. 2003;48: p. 271.
Crane W.G., Fletcher D.C., Schuchard R.A. Photopsias and Charles Bonnet Syndrome in a Low Vision Population. Ophthalmology Clinics of North America. 1994:7;143-49.
The Eye Disease Prevalence Research Group. Prevalence of Age-Related Macular Degeneration in the United States. Arch Ophthalmol. 2004;122:564-572.
Ferrara N., Gerber H.P., LeCouter J. The Biology of VEGF and Its Receptors. Nat Med. 2003;9:669-679.
Klein R., Klein B.E.K., Jensen S.C., Meuer S.M. The Five-Year Incidence and Progression of Age-Related Maculopathy. The Beaver Dam Eye Study. Ophthalmology. 1997;104:7-21.
Mogk L.G., Dhal D., Bruce C., et. al. Depression and Pain in Seniors with Vision Loss and the Impact of Short-Term Visual Rehabilitation. International Society for Low Vision Research and Rehabilitation ? Vision Meeting 2002 abstract. Available online at http://www.islrr.org/Vision02/539.html.
Witmer A.N., Vrensen G.F.J.M. Van Noorden C.J.F., Schlingemann R.O. Vascular Endothelial Growth Factors and Angiogenesis in Eye Disease. Prog Retin Eye Res. 2003;22: 1-29.